Since we decided to bring mum home I have experienced a wide range of strong emotions. Mostly a feeling of relief that we got the right decision and an eagerness to get started; but also occasionally, fear and foreboding about my world getting smaller and having less freedom to go back to my own home. … Continue reading Bringing Mum Home: Emotions and Preparations
It’s been several weeks since I attended a valuable and engaging programme for carers of people living with dementia. It is a new initiative, and this was the first in a series of pilot courses run by Dementia Carers Count. Since the three-day programme, that took place in a comfortable hotel in Swindon, I have been … Continue reading New Course for Family Carers of People with Dementia
The Mental Capacity Act 2005 protects people living with dementia. A friend of mine, who works in social care, had mentioned the Act to me in response to some concerns I had about my mother. Feeling overwhelmed by all that I didn’t know about caring for someone with dementia, I didn't look further into it … Continue reading Law Protects People with Dementia
Since mum went into care in October 2015, I have been wondering whether an institutional home is the right place for her. Experts and professionals involved in dementia care have insisted to me that she is better off in a care home. This reassurance has put my mind at rest for weeks, and even months, at a time. However, the question invariably comes back with greater force and more insistence than before.
Is it OK to deceive someone who has dementia? The general view seems to be yes, if it helps avoid unnecessary distress, and is in their best interests to do so. But how do you assess when that is? One major deception has been troubling me…
The worst part of every encounter with my mother comes when it is time to say goodbye. I sometimes stay at the care home much longer than I planned, trying to find the best moment to go. When the time comes she often seems surprised, and asks, ‘You’re not leaving me here on my own, … Continue reading How to Say Goodbye
Is it possible to be contented if you have dementia? More importantly to me, can my mother be contented with dementia? The main reason I started this blog is to record my learning as I attempt to implement a method developed by the Contented Dementia Trust to improve the quality of life for my mother. … Continue reading Is Contented Dementia a thing?