The Hunter Centre asked me to write about my experience of caring for my mother. As an organisation that supports people living with dementia and their carers, they wanted to bring a personal perspective to navigating this sometimes challenging area. I wrote the following post for them. It is a summary of my caring journey … Continue reading Mum, me and dementia: Learning the important things in life
Since I got back from holiday mum has been more grumpy than usual. Sometimes she feels she has been wronged, withdraws, gives monosyllabic responses and behaves a bit like a sulky teenager. Not just with me, but with special carers that she normally gets on with.
The last six weeks have been very difficult for mum and I. As mum wasn't well she needed more active care and psychological support. To cope I needed more time off and good sleep, but the opposite happened. I felt the strain at times.
Now I have adequate time off and enough sleep, the biggest issue I face is how to support mum through times of emotional turmoil. The turmoil is not only felt by her. When mum dips into despair or becomes greatly agitated, I experience a surprising range of emotions. Empathy, compassion and concern for mum are … Continue reading Responding Mindfully to Emotional Turmoil
Since mum has been home I have been painfully struck by the impact of vascular dementia on her memory. I thought I was prepared for the time when she no longer remembered me. What I didn’t expect is that her memories would come and go.
Since we decided to bring mum home I have experienced a wide range of strong emotions. Mostly a feeling of relief that we got the right decision and an eagerness to get started; but also occasionally, fear and foreboding about my world getting smaller and having less freedom to go back to my own home. … Continue reading Bringing Mum Home: Emotions and Preparations
Choosing a care home for a family member living with dementia, may be the most important decision you ever make on their behalf. Of course if they have the capacity to make the decision, your role might be to support them. Either way, the more informed you are the better. The choice will have huge … Continue reading Choosing a Care Home
Whether you care for a relative with dementia at home, or visit them in a care home, you need to be mindful of the potential toll on your own physical and mental health. Helpful advice that I dismissed. Don’t make the same mistake.